Sunday, January 26, 2014

Becoming A Heart Mom!!!

     Being a parent of a special needs child I am always reading and educating myself on anything I can get my hands on.  The more I can learn and teach Cora about her heart defect, the more educated she will be about her body.  I always tell my girls: Knowledge is power and the only way to gain knowledge is through educating! I was researching and reading the other night I came across a beautiful poem that expresses what I feel as a Heart Mom.  I read and cried all by myself, realizing everything in this poem is exact.  Please take a minute to read the poem below.  It will give you an inside look at me....and other Heart Mom's around. I love you Cora!

The Day I Became a Heart Mother

One day my world came crashing down,
I'll never be the same.
They told me that my child was sick.
I thought, "am I to blame"?
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved her for so long.

I will not give up on this child.
I will listen to your advice.
I will give my child any chance.
No matter what the price.
I will learn all that I need to help my child thrive.
I'll even use that feeding tube.
My child must survive!

Will she need a lot of therapy?
Will she gain the needed weight?
Please God, help me do this.
I will accept our fate.

When the monitors beep at night, it serves as my reminder.
How many parents would love that sound.
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my child's bed.
I watch her sleep for quite a while.
I bend down and kiss her head.
I cry for the parents whose hearts have been broken.
I look to You wondering why?
Oh Lord, I just can't know your matter how I try.

And yet, I trust you hold her life, and guide us through each day.
My mind says savor each moment she here,
but my heart begs, "PLEASE let her stay"!

From pacing the surgical waiting room, to sitting by her bed.
From wishing for a good nights sleep, to learning every med.
From wondering, "will she be alright?", to watching her reach out her hands.
With every smile my heart just melts, despite life's harsh demands.

For all who see that faded line.
I look to them and smile.
You see my child is loved so much.
I would face ANY trial.
That scar I trace with my finger (It's the door to her beautiful heart).
God must have known how much I'd love her (Just as He loved her from the start).

A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.

Every day I will try and remember,
I was chosen for her (and no other).
I will always embrace that beautiful day.......
When I became a "Heart Mother".

- Author Unknown

Blessings until next time!


Sunday, January 19, 2014

My 1 in 100!!

     I have shared so much about my Cora and our highs and lows, never taking a moment to gloat about my daughter!  Just a everyday Mom sharing her love for her daughter!  So here I am ready to gloat about my girl.  Here is my Cora Evette.  My oldest daughter, who will be 13 on the 23rd, is happy sweet and so giving.  Cora Evette IS MY 1 in 100!!!!

Blessings until next time.

Sunday, January 5, 2014

Kicking off 2014....CHD Style!!!!

     Happy 2014 to you!!!  I am excited about 2014 and the endless opportunities that await.  February 7-14 is Congenital Heart Defect Awareness week!  I am striving this next month to spread awareness by educating and advocating.  I sure hope you will join me!!  

     I hope during my journey with you to provide educatation about Congenital Heart Defects you will learn valuable information!  There is so much people don't know about CHD and spreading awareness is the only way I feel I can help my daughter!  Educating is so important for CHD children because knowledge will provide more funding for Congenital Heart Defects.  Help me spread awareness for my daughter, and all CHD children!  

FACT: Congenital Heart Defects is the World's Number 1 Birth Defect!!

Blessings until next time.